소아암 완치자의 삶의 질 향상을 위한 서비스 욕구 = Childhood Cancer Survivor’s Services Needs for the Better Quality of Life

다국어 초록 (Multilingual Abstract)

Purpose: The study aimed to identity specific needs for services and programs to help childhood cancer survivors adjust and adapt to life after treatment. Methods: In-depth interviews were conducted with 31 childhood cancer survivors, diagnosed with cancer before the age of 18 and currently between 15 and 39 years of age. Each survivor had completed his/her cancer treatment.
Results: The participating cancer survivors reported needs for services related to psychological counseling, schooling and learning, social skills, mentorship, integrated health management, self support activities, families of survivors, and public recognition and awareness. Conclusion: The results of the study indicate a need to better understand childhood cancer survivors,provides a basis for developing various services and programs to improve the quality of life among childhood cancer patients,survivors, and their families, and supports the importance of psychosocial adjustment.

참고문헌 (Reference)

1 권혜진, "암 치료가 종료된 청소년의 사회적 지지와 자아존중감이 우울에 미치는 영향" 아동간호학회 15 (15): 219-227, 2009

2 김윤정, "소아암 생존 청소년의 질병력과 부모지지에 따른 삶의 질" 정신간호학회 17 (17): 85-96, 2008

3 유미애, "백혈병 생존 청소년의 심리사회적 적응에 대한 내용분석" 아동간호학회 12 (12): 304-313, 2006

4 Smith, M. Y., "Validation of the PTSD-Civilian Version in survivors of bone marrow transplantation" 12 : 485-499, 1999

5 Cohen, J. A., "Treating Trauma and Traumatic Grief in Children and Adolescents" Guilford Press 2006

6 Green, B. L., "Trauma history as a predictor of psychologic symptoms in women with breast cancer" 18 : 1084-1093, 2000

7 Tedeschi, R. G., "Trauma and transformation : Growing in the aftermath of suffering" Sage 1995

8 Foa, E. B., "The validation of a self-report measure of posttraumatic stress disorder : The Posttraumatic Diagnostic Scale" 9 : 445-451, 1997

9 Welch-McCaffrey, D., "Surviving adult cancers. Part 2 : Psychosocial implications" 111 : 517-524, 1989

10 Andrykowski, M. A., "Stability and change in posttraumatic stress disorder symptoms following breast cancer treatment : A 1year follow-up" 9 : 69-78, 2000

11 Yi, J., "Self-portraits of families with young adult cancer survivors : Using photovoice methodology" 28 : 219-243, 2010

12 Mullan, F., "Seasons of survival : Reflections of a physician with cancer" 313 : 270-273, 1985

13 Nordin, K., "Reactions to gastrointestinal cancer-variation in mental adjustment and emotional well-being over time in patients with different prognoses" 7 : 413-423, 1998

14 Meeske, K. A., "Posttraumatic stress, quality of life, and psychological distress in young adult survivors of childhood cancer" 28 : 481-489, 2001

15 Langeveld, N. E., "Posttraumatic stress symptoms in adult survivors of childhood cancer" 42 : 604-610, 2004

16 Wang, C., "Photovoice : A participatory action research strategy applied to women’s health" 8 : 185-192, 1999

17 Lincoln, Y. S., "Naturalistic inquiry" Sage 1985

18 Madan-Swain, A., "Identity in adolescent survivors of childhood cancer" 25 : 105-115, 2000

19 Nathan, P., "Health behaviors, medical care, and interventions to promote healthy living in the childhood cancer survivor study cohort" 27 : 2363-2373, 2009

20 Cordova, M. J., "Frequency and correlates of posttraumatic-stress-disorder-like symptoms after treatment for breast cancer" 63 : 981-986, 1995

21 American Psychiatric Association, "Diagnostic and statistical manual of mental disorders(4th ed.)" American Psychiatric Association 1994

22 Oeffinger, K. C., "Chronic health conditions in adult survivors of childhood cancer" 355 : 1572-1582, 2006

23 Cella, D. F., "Cancer recurrence as a traumatic event" 16 : 15-22, 1990

24 Strauss, A., "Basics of qualitative research : Techniques and procedures for developing grounded theory(2nd ed.)" Sage Publications Inc 1998

25 Korean National Cancer Institute, "Annual report of cancer statistics in Korea"

26 National Cancer Institute, "About survivorship research: Survivorship definitions"

27 Bruce, M., "A systematic and conceptual review of posttraumatic stress in childhood cancer survivors and their parents" 26 : 233-256, 2006