신상영역에서 공공후견을 이용하는 발달장애인의 의사결정 경험에 관한 사례연구 = A Case Study on Experience in the Decision Making of Developmentally Disabled Persons Using Public Guardianship for Personal Matters

다국어 초록 (Multilingual Abstract)

This study explored the content of the decision-making process of developmentally disabled persons using public guardianship, which has been arranged as one of the social efforts and measures to guarantee their right of self-determination, for personal matters. In particular, the study intended to focus on the right of self-determination in the decision-making process, revealing supported decision-making and surrogate decision-making at issues. We selected five main participants and seven auxiliary participants for the study, collected data through document review, observation, and interview, and presented our results through within-case analysis and across-case analysis by using a qualitative case study methodology suggested by Creswell. We examined similarities and differences among cases in the within-case analysis. In the across-case analysis, themes across the cases were found: “mixture of developmentally disabled persons, guardians, and ‘us’,” “mixture of roles of guardians,” “mixture of the subjectivity and passivity of developmentally disabled persons,” and “mixture of tasks of guardians” in the decision-making process. Eventually, public guardianship was showing signs of institutional and practical confusion. Based on these results, some implications were suggested.