바이오뱅크 : 현황과 윤리적 쟁점

다국어 초록 (Multilingual Abstract)

There are now about 1,600 genes known to be associated with some, usually complex (meaning, multiply caused) disease. The more factors are involved in a disease, the more various kinds of medical information are needed to draw significant conclusions about it. The relevant information includes lifestyles, local environmental conditions, clinical histories. In order to gather the information and to perform a research based on the information, we need to collect bio-samples from voluntary donors as well as their medical and some relevant personal histories under informed consent, and make a systematic medical database from it. Recognizing this growing need, a few countries now are establishing or preparing for the establishment of national-scale biobanks. The paper briefly surveys the international developments of biobank, and discuss a number of its ethical issues concerning the set-up procedure and future operation of biobank. The cases of Iceland and of UK are analyzed in details.

목차 (Table of Contents)

• Ⅰ. 머리말
• Ⅱ. 바이오랭크란?
• Ⅲ. 아이슬란드의 사례
• Ⅳ. 영국 바이오뱅크(UK BIOBANK)
• Ⅴ. 맺음말