School Nursee-Parent Partnership in School Health Care for Children with Type 1 Diabetes: A Hybrid Method Concept Analysis

다국어 초록 (Multilingual Abstract)

Purpose: To define school nurseeparent partnerships in school health care for children with type 1 diabetes (T1D) and determine its attributes using a hybrid model.
Methods: This method involves a three-phase process: theoretical, fieldwork, and analytical. A literature review was conducted during the theoretical phase. A literature search of articles from January 1991 to February 2020 was conducted using relevant electronic databases. Eighty-three articles that met the inclusion criteria were completely read. Fieldwork data were collected through individual interviews from February to July 2019 in South Korea. In the fieldwork phase, interviews were conducted individually with 22 mothers of students with T1D and 20 school nurses recruited by purposeful sampling.
Inductive content analysis was conducted. The findings from the theoretical phase were integrated with those from the fieldwork phase, and the final concept was derived.
Results: School nurseeparent partnership in school health care for children with T1D has been defined as an interactive process of maintaining a balanced responsibility and providing tailored care to meet needs by establishing trusting relationships and communicating transparently and openly. This analysis yielded four attributes: trusting relationships, transparent and open communication, balanced responsibility, and providing tailored care to meet needsdthis entails providing nursing actions by advocating for students and performing a negotiated role together or individually for student and family.
Conclusion: The findings of this study add to the importance of an attribute of balancing responsibility for partnership in school health care. The results show that this partnership could contribute to the development of a scale, theory, and nursing intervention in school health care for children with T1D.

참고문헌 (Reference)

1 최미영 ; 방경숙, "아동간호사와 환아 부모의 파트너십 측정도구 개발" 한국간호과학회 43 (43): 194-202, 2013

2 Davis H, "Working in Partnership through Early Support: distance learning text: working with parents in partnership (book chapter)" Department of Education

3 Coyne I, "What does family-centred care mean to nurses and how do they think it could be enhanced in practice" 67 (67): 2561-2573, 2011

4 Lub V, "Validity in qualitative evaluation : linking purposes, paradigms, and perspectives" 14 (14): 1-8, 2015

5 Haegele JA, "Understanding parents' experiences with children with type 1 diabetes : a qualitative inquiry" 2022

6 Lawrence JM, "Trends in prevalence of type 1 and type 2 diabetes in children and adolescents in the US, 2001-2017" 326 (326): 717-727, 2021

7 Benson A, "To tell or not to tell : a systematic review of the disclosure practices of children living with epilepsy and their parents" 51 : 73-95, 2015

8 Stefanowicz A, "The role of a school nurse in the care of a child with diabetes mellitus type 1-the perspectives of patients and their parents : literature review" 57 (57): 166-174, 2018

9 Wilt L, "The relationships among school nurse to student ratios, self-efficacy, and glycemic control in adolescents with type 1 diabetes" 37 (37): 230-240, 2021

10 Elo S, "The qualitative content analysis process" 62 (62): 107-115, 2008

11 Lewallen TC, "The Whole School, Whole Community, Whole Child model : a new approach for improving educational attainment and healthy development for students" 85 (85): 729-739, 2015

12 Kennedy AP, "Systematic ethnography of school-age children with bleeding disorders and other chronic illnesses : exploring children's perceptions of partnership roles in family-centred care of their chronic illness" 38 (38): 863-869, 2012

13 Thorstensson S, "Swedish school nurses'experiences in supporting students with type I diabetes in their school environment" 36 (36): 142-147, 2016

14 Jackson CC, "Supporting the student's graduated independence in diabetes care" 31 (31): 202-204, 2016

15 Korstjens I, "Series: practical guidance to qualitative research. Part 4:trustworthiness and publishing" 24 (24): 120-124, 2018

16 ALBashtawy M, "Self-medication among school students" 31 (31): 110-116, 2015

17 Ottosson AB, "Self-care management of type 1 diabetes has improved in Swedish schools according to children and adolescents" 106 (106): 1987-1993, 2017

18 Smith LB, "School-based management of pediatric type 1 diabetes : recommendations, advances, and gaps in knowledge" 19 (19): 37-, 2019

19 Uhm JY, "School nurses' perceptions regarding barriers and facilitators in caring for children with chronic diseases in school settings : a mixed studies review" 22 (22): 868-880, 2020

20 McClanahan R, "School nurses and care coordination for children with complex needs : an integrative review" 31 (31): 34-43, 2015

21 Bobo N, "School nurse-led care coordination : proceedings from the national strategy to action roundtable" 34 (34): 229-234, 2019

22 Saunders B, "Saturation in qualitative research : exploring its conceptualization and operationalization" 52 (52): 1893-1907, 2018

23 Graneheim UH, "Qualitative content analysis in nursing research : concepts, procedures and measures to achieve trustworthiness" 24 (24): 105-112, 2004

24 Uhm JY, "Predicting quality of life among mothers in an online health community for children with type 1 diabetes" 7 (7): 2020

25 Haugstvedt A, "Perceived family burden and emotional distress : similarities and differences between mothers and fathers of children with type 1 diabetes in a population-based study" 12 (12): 107-114, 2011

26 American Academy of Pediatrics, "Patient-and family-centered care coordination : a framework for integrating care for children and youth across multiple systems" 133 (133): e1451-e1460, 2014

27 Bidmead C, "Partnership working: what does it really mean?" 75 (75): 256-259, 2002

28 Lee P, "Partnership in care : a critical exploration of how this may be applied to children attending the Accident and Emergency department" 7 (7): 119-123, 1999

29 Jang HY, "Partnership between staffand family in long-term care facility : a hybrid concept analysis" 15 (15): 1801179-, 2020

30 Kernaghan K, "Partnership and public administration : conceptual and practical considerations" 36 (36): 57-76, 1993

31 Gallant MH, "Partnership : an analysis of the concept within the nurse-client relationship" 40 (40): 149-157, 2002

32 Mapp KL, "Partners in education: a dual capacity-building framework for family-school partnerships" U.S. Department of Education 2013

33 Hook ML, "Partnering with patients–a concept ready for action" 56 (56): 133-143, 2006

34 Smith J, "Parents' and health professionals' views of collaboration in the management of childhood long-term conditions" 43 : 36-44, 2018

35 Sousa P, "Parental perspectives on negotiation of their child's care in hospital" 25 (25): 24-28, 2013

36 Nieuwesteeg A, "Paediatric parenting stress in fathers and mothers of young children with Type 1 diabetes : a longitudinal study" 34 (34): 821-827, 2017

37 Isik E, "Nursing care coordination for chronic diseases in schools : a concept analysis" 2 (2): 2-7, 2019

38 Corlett J, "Negotiation of parental roles within family-centred care : a review of the research" 15 (15): 1308-1316, 2006

39 Tome Perez Y, "Needs of schoolchildren with type 1 diabetes in Extremadura : family perceptions" 90 (90): 173-179, 2019

40 Lincoln YS, "Naturalistic inquiry" Sage 1985

41 Child and Adolescent Health Measurement Initiative [CAHMI], "National survey of children's health (NSCH) data query"

42 "NVivo (release 1.5.1)"

43 Edwards A, "NCs Bureau, editor. Nursing in schools: how school nurses support pupils with long-term health condition" National Children's Bureau 2016

44 March CA, "Modern diabetes devices in the school setting : perspectives from school nurses" 21 (21): 832-840, 2020

45 McCollum DC, "Management of type 1 diabetes in primary schools in Ireland : a cross-sectional survey" 188 (188): 835-841, 2019

46 AADE, "Management of children with diabetes in the school setting" 45 (45): 54-59, 2016

47 Smith J, "Involving parents in managing their child's longterm condition-a concept synthesis of family-centered care and partnershipin-care" 30 (30): 143-159, 2015

48 채현욱 ; 서기현 ; 송경철 ; 최한샘 ; 서정환 ; 권아름 ; 하상미 ; 김호성, "Incidence and Prevalence of Type 1 Diabetes Mellitus among Korean Children and Adolescents between 2007 and 2017: An Epidemiologic Study Based on a National Database" 대한당뇨병학회 44 (44): 866-874, 2020

49 Kise SS, "Improving school experiences for adolescents with type 1 diabetes" 87 (87): 363-375, 2017

50 Centers for Disease Control and Prevention CDC, "Health and academics"

51 Maughan ED, "Framework for 21st Century School Nursing Practice : National Association of School Nurses" 31 (31): 45-53, 2016

52 Haines SJ, "Fostering familyeschool and communityeschool partnerships in inclusive schools : using practice as a guide" 40 (40): 227-239, 2015

53 Klein NJ, "Flying by the seat of their pants : a grounded theory of school nurse case management" 75 (75): 3677-3688, 2019

54 O'Connor S, "Family-centred care of children and young people in the acute hospital setting : a concept analysis" 28 (28): 3353-3367, 2019

55 Hill C, "Family-centered care from the perspective of parents of children cared for in a pediatric intensive care unit: an integrative review" 2018

56 Willgerodt M, "Enhancing care coordination for students with type 1 diabetes" 90 (90): 651-657, 2020

57 National Association of School Nurses [NASN], "Diabetes management in the school setting (Position Statement). In: Nurses NAoS. February 2017" National Association of School Nurses

58 Hutchinson L, "Creating connections : strategies to improve adolescent boys' access and engagement with school-based health services" 40 (40): 258-268, 2012

59 McEwen M, "Concept development: clarifying meaning of terms" Lippincott Williams & Wilkins 2014

60 Smith W, "Concept analysis of family-centered care of hospitalized pediatric patients" 42 : 57-64, 2018

61 Slas E, "Communication between schools nurses and health care providers on students with asthma : an integrative review" 38 (38): 48-60, 2022

62 Mohr J, "Characteristics of partnership success : partnership attributes, communication behavior, and conflict resolution techniques" 15 (15): 135-152, 1994

63 Krischer JP, "Characteristics of children diagnosed with type 1 diabetes before vs after 6 years of age in the TEDDY cohort study" 64 (64): 2247-2257, 2021

64 Bullard JS, "COVID-19 : planning and postpandemic partnerships" 2020

65 Baker D, "Building student and family-centered care coordination through ongoing delivery system design" 32 (32): 42-49, 2017

66 Kakumanu S, "Building school health partnerships to improve pediatric asthma care : the school-based asthma management program" 17 (17): 160-166, 2017

67 Holmstr€om MR, "Being facilitators in a challenging context-school personnel's experiences of caring for youth with diabetes type 1" 43 : e114-e119, 2018

68 Uhm JY, "Barriers to and facilitators of school health care for students with chronic disease as perceived by their parents : a mixed systematic review" 8 (8): 2020

69 Montali L, "Barriers and facilitators of type 1 diabetes self-care in adolescents and young adults" 62 : 136-143, 2022

70 Alaqeel AA, "Are children and adolescents with type 1 diabetes in Saudi Arabia safe at school?" 40 (40): 1019-1026, 2019

71 Schwart-Barcott D, "An expansion and elaboration of the hybrid model in nursing" W. B. Saunders 2000

72 Best NC, "An appraisal of school nurse health services and programs in North Carolina public schools, 2006-2016" 37 (37): 146-156, 2021

73 "American Heritage Dictionary"

74 Terry D, "A qualitative analysis of school nurses' experience caring for students with psychogenic nonepileptic events" 37 (37): 441-448, 2021

75 Casey A, "A partnership with child and family" 8 (8): 8-9, 1988

76 Bidmead C, "A concept analysis of partnership with clients" 78 (78): 203-208, 2005